I finished radiation the Friday of May long weekend and the whole treatment went really well. The staff in there is amazing. They made the whole process very comfortable and so super quick! Couldn't believe what little time it took each day. I did have some side effects but it was all manageable. The fatigue is still hanging on quite a bit but I'm hoping this will improve in the next couple weeks. I was able to join the student physiotherapy program at Cancer Care and they were able to really help me. They set me up on an exercise program to help with fatigue and with some muscle strengthening. Steroids really do a number wasting your muscles, and since it looks like I will be on them long term now I want to do what I can to keep strong. I did try to wean off the steroids completely but was having too many side effects so will be staying on a low dose. Now that the radiation is finished we are in this wait and see phase. I have a brain MRI scheduled in August and we will see where things are then. I have been feeling quite well so take this as a good sign that the radiation has done something positive. Fingers crossed!
I've been sort of waiting to update my blog until I heard about whether or not I was getting access to the Ipilibumab (Yervoy) immunotherapy but here I am - still waiting. I have been denied so far by the drug company and by Pharmacare. I'm hoping to hear this week if my private insurance plan will step up and cover the cost. It has been quite the process since I'm the first in Manitoba to be accessing this drug in the order that I am. I was put on the Keytruda first so sort of skipped over the Ipi but it does work very well for some people so it's definitely worth a try. It's a learning curve for everyone involved which is why each step is taking forever. I feel at this point like I'm just floating around in limbo waiting and hoping for some good news. It's been taking so much longer than I thought it would so I'm still trying to be patient but that's not easy. My family is really feeling it too. Waiting for anything is never any fun! Especially something this big and life changing. This drug could give me more time with my family. Some people have responded really well to it. Maybe I would too.
We attended the annual Melanoma Information Night this month and there was some really positive information shared. Treatments are being combined and working together to give patients longer lives. Stage 4 patients who would have been once told there was nothing more that could be done now have options. It's pretty amazing for me to think back to that dismal first information night 7 years ago where there wasn't a lot of great information to be shared as compared to 2017. Wow! Things have really come a long way!!!
We attended the annual Melanoma Information Night this month and there was some really positive information shared. Treatments are being combined and working together to give patients longer lives. Stage 4 patients who would have been once told there was nothing more that could be done now have options. It's pretty amazing for me to think back to that dismal first information night 7 years ago where there wasn't a lot of great information to be shared as compared to 2017. Wow! Things have really come a long way!!!
Although these last couple of months have not been easy ones, there have been so many wonderful moments at the same time. We have spent a lot of good quality time with the people we love. I have had so much love and support from everyone around me! This is what I am staying focused on while we wait to hear if I have this next option.
I hope this summer brings you all wonderful time with your loved ones. Lots of love and laughs!
xo Natalie
I hope this summer brings you all wonderful time with your loved ones. Lots of love and laughs!
xo Natalie
It's good to know that your treatment went well. Not many radiation treatment centers have a cordial staff and quick process. Yes, I bet all procedures that involve radiation have a bit of side effect but surely that's not something you cannot handle. I hope the next session will go as comfy as the last one. Good luck with your treatment.
ReplyDeleteKacey @ Glendale MRI
Represent Pakistani Escorts considerable authority in nearby young ladies, our Pakistani just female Islamabad Escorts going from inviting young lady adjacent to proficient.
ReplyDelete
ReplyDeleteWHAT A GREAT MIRACLE THAT I HAVE EVER SEE IN MY LIFE. My names are Robert Mary
I’m a citizen of United Kingdom, My younger sister was Sick of
breast cancer and her name is Robert Jane, I and my family have taking
her to all kind of hospital in UK still yet no good result. I decided
to go to the internet and search for cancer cure so that was how I
find a lady called Sarah peter she was testifies to the world about
the goodness of a herbal man who has the root and half to cure all
kind of disease and the herbal email was there. So I decided to
contact the herbal man for my younger sister help to cure her breast
cancer. I contacted him and told him my problem he told me that I
should not worry that my sister cancer will be cure, he told me that
there is a medicine that he is going to give me that I will cook it
and give it to my sister to drink for one week, so I ask how can I
receive the cure that I am in UK, he told me
That I will pay for the delivery service. The courier service can
transport it to me so he told me the amount I will pay, so my dad paid
for the delivery fee. two days later I receive the cure from the
courier service so I used it as the herbal man instructed me to,
before the week complete my sister cancer was healed and it was like a
dream to me not knowing that it was physical I and my family were very
happy about the miracle of Doctor so my dad wanted to pay him 5
million us dollars the herbal man did not accept the offer from my dad,but I don't know why he did not accept the offer,he only said
I should tell the world about him and his miracle he perform so am now
here to tell the world about him if you or your relative is having any
kind of disease that you can't get from the hospital please contact
Dr.ogididanspelltemple@gmail.com or WhatsApp +2347067393105,message him on instragram dr.ogididan or website ogididanherbalhome.wordpress.com for the cure, he will help you out
with any problems you have.To get more information you can message me via email robertmary8947@gmail.com
WHAT A GREAT MIRACLE THAT I HAVE EVER SEE IN MY LIFE. My names are Robert Mary
ReplyDeleteI’m a citizen of United Kingdom, My younger sister was Sicking of
breast cancer and her name is Robert Jane, I and my family have taking
her to all kind of hospital in UK still yet no good result. I decided
to go to the internet and search for cancer cure so that was how I
find a lady called Sarah peter she was testifies to the world about
the goodness of a herbal man who has the root and half to cure all
kind of disease and the herbal email was there. So I decided to
contact the herbal man for my younger sister help to cure her breast
cancer. I contacted him and told him my problem he told me that I
should not worry that my sister cancer will be cure, he told me that
there is a medicine that he is going to give me that I will cook it
and give it to my sister to drink for one week, so I ask how can I
receive the cure that I am in UK, he told me
That I will pay for the delivery service. The courier service can
transport it to me so he told me the amount I will pay, so my dad paid
for the delivery fee. two days later I receive the cure from the
courier service so I used it as the herbal man instructed me to,
before the week complete my sister cancer was healed and it was like a
dream to me not knowing that it was physical I and my family were very
happy about the miracle of Doctor so my dad wanted to pay him 5
million us dollars the herbal man did not accept the offer from my dad,but I don't know why he did not accept the offer,he only said
I should tell the world about him and his miracle he perform so am now
here to tell the world about him if you or your relative is having any
kind of disease that you can't get from the hospital please contact
Dr.ogididanspelltemple@gmail.com or WhatsApp him +2347067393105, website:> drogididherbalhome.wordpress.com message him on instragram dr.ogididan for the cure, he will help you out
with any problems you have.To get more information you can message me via email robertmary8947@gmail.com